Fall is almost here and football season is already in full swing but did you know it is Newborn Screening and Leukodystrophy Awareness Month?!
When Hunter was born in 1997, a newborn screening test for Krabbe Disease didn’t even exist. Now, New York and Missouri screen all babies at birth for Krabbe, with more states soon to follow.
Newborn Screening is vital because treatment for Krabbe must be done before a child is symptomatic.
Elmer was the first child diagnosed with Krabbe Disease through newborn screening in New York. He received a cord blood transplant shortly after birth, which prevented the progression of this horrible disease.
Last week, Elmer attended his first day of Kindergarten!!
Children like Elmer inspire and encourage us to continue the fight for expanded newborn screening, and research for better treatments and a cure for Leukodystrophies.
In just minutes, you can make a huge difference in the lives of our children.
With Hope and Prayer,
Through Pro Stanchions Pro Charities program, 5% of all sales of Line-King products are donated to charity, one of which is Hunter's Hope. Please feel free to learn more about Hunter's Hope by clicking the links in the article.